90% of ALS cases are sporadic. ALS can strike any race or ethnic background, at any age.
It is estimated that ALS is responsible for nearly two deaths per hundred thousand population annually. More people die every year of ALS than of Huntington's disease (about 5 times higher) or multiple sclerosis.
A little over 5,000 people in the U.S. are diagnosed with ALS each year. It is estimated that as many as 30,000 Americans may have the disease at any given time.
The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis. 20% live longer than 5 years.
Approximately 80% of cases begin between the ages of 40 - 70.
Recent studies show that military veterans, particularly those deployed during the Gulf War, are approximately twice as likely to develop ALS.
The financial cost to families of persons with ALS is exceedingly high. It is estimated that in the advanced stages, care can cost an average of $200,000 a year. Patients' and relatives' entire savings are quickly depleted because of the extraordinary cost involved in the care of ALS patients.
Chances are someone you know or love will die from ALS.