The Foundation

Our Stories

Our goal at the ALS Foundation for Life is to help improve the quality of life for those battling ALS on a daily basis.

Some of the home renovation projects we have provided financial assistance for include ramps, stair lifts, and bathroom renovations. We have also provided funds for commodes, Hoyer lifts, special leg braces, bio-bidet, BiPap machines, communication equipment, Powerlift chairs, van rentals for special outings, neck braces, and prescription drugs.


A Few Stories of People We've Helped

Tom

When Tom had a feeding tube put in, he was unfortunately unable to tolerate the typical tube feeding product. An alternative product called Compleat worked well for him, but Medicare would not cover the cost of the Compleat. The ALS Foundation for Life provided the funds to cover the cost of the Compleat.

Matt

Matt was still ambulatory, but had difficulty supporting his neck and arms, especially when sitting. The ALS Foundation for Life provided the funds for a Humanscale Freedom Chair, which was recommended by his physical therapist at MGH.

Catherine

Catherine is in her 50’s and lives in her own home. She had been using a makeshift ramp that friends installed for her. The ALS Foundation for Life provided the funds to have a permanent ramp installed.

Laura

Laura loves to go on outings with her boyfriend, despite her limitations. The ALS Foundation for Life provided the funds to cover repairs needed on her wheelchair van.

Jack

Jack is ventilator dependent and wheelchair bound. His wife and children are his caretakers and they are having difficulty transferring him since he is unable to assist. The Foundation worked with another organization to obtain a sizable discount on the purchase of a portable ceiling lift and provided a grant to cover the final cost.

Ellen

An ALS patient in western MA, Ellen required a Hoyer Lift and commode sling so that her caretaker could move her safely. The ALS Foundation for Life provided a grant to cover the cost of a Hoyer Lift and commode sling for Ellen.

Sara

An ALS patient in her 40's, Sara was no longer able to get into the bath tub. The ALS Foundation for Life provided the funds to have her fiberglass tub cut and a sliding door installed. This adaptation allows Sara to continue to bathe in her bath tub.